Progress on Miriam's Health
Mar. 20th, 2024 05:47 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
stormdogI'm ridiculously thrilled by some solid progress on Miriam's health issues.
To try to abstract things to a point of easy understandability, there is a test, test foo, that Miriam has had done several times.
In the past, she has always gotten result A. Result A is not indictive of auto-immune issues. However, it's well-documented that result A can *actually* be a pattern called pseudo-result-A, which is caused by overlapping multiple other results that *do* indicate auto-immune issues. There's a note about this in the official medical literature about this test and has been for years, yet it has not been incorporated into the actual process of test interpretation. It takes significant expertise to distinguish pseudo-A from actual A, and doing that check isn't part of the standard process, so an unknown percentage of people with auto-immune issues are getting dismissed as negative on test foo.
The most recent panel of tests Miriam got returned both result B and result C on test foo. This is what Miriam has suspected has been going on for *at least a year* and probably longer, but there's no way to contact a testing center and ask if they have anyone with expertise to make this kind of judgement and who could look at the test.
To say I'm thrilled would be an understatement. Possible progress toward treatment for her pain! And at the same time, The fact that this takes *so long* for the medical establishment to figure out when it seems so obvious a possibility to us is infuriating.
To try to abstract things to a point of easy understandability, there is a test, test foo, that Miriam has had done several times.
In the past, she has always gotten result A. Result A is not indictive of auto-immune issues. However, it's well-documented that result A can *actually* be a pattern called pseudo-result-A, which is caused by overlapping multiple other results that *do* indicate auto-immune issues. There's a note about this in the official medical literature about this test and has been for years, yet it has not been incorporated into the actual process of test interpretation. It takes significant expertise to distinguish pseudo-A from actual A, and doing that check isn't part of the standard process, so an unknown percentage of people with auto-immune issues are getting dismissed as negative on test foo.
The most recent panel of tests Miriam got returned both result B and result C on test foo. This is what Miriam has suspected has been going on for *at least a year* and probably longer, but there's no way to contact a testing center and ask if they have anyone with expertise to make this kind of judgement and who could look at the test.
To say I'm thrilled would be an understatement. Possible progress toward treatment for her pain! And at the same time, The fact that this takes *so long* for the medical establishment to figure out when it seems so obvious a possibility to us is infuriating.
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Date: 2024-03-20 11:48 pm (UTC)no subject
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Date: 2024-03-21 07:59 pm (UTC)As Miriam tells people, it's not as though she *wants* to have this (these?) illnesses. But she's already got the symptoms, so having test results like this that say that start to explain why is a very good thing!