stormdog: a woman with light skin and long brown hair that cascades over one shoulder. On her other side, she is holding a large plush shark against herself. She has pink fingernails and pink cat eye glasses (Default)
Other than that, I regret not writing here more and just putting lots of short bits on Facebook, but writing things at length requires more of some kind of energy than I usually have, and putting lots of short stuff here feels like it would be annoying. I'm not sure why that latter part is the case.

The second appointment with Miriam's new rheumatologist is coming up next week. It turns out that the labs who do bloodwork here just completely failed to do one of the tests the doctor requisitioned. We've tried to follow up with the doctor's office a couple times, and they have finally figured out that the test never got done. They contacted LifeLabs, the place that does the blood draws, and LifeLabs said that test was not ordered. This has happened before, so Miriam had a picture of the req form on her phone to send to the doctor, complete with a big red arrow pointing at the test.

But at this point, it's not going to be done before the appointment, and if this causes another month or two of delays in diagnosis and treatment, I'm going to be very angry. I fervently hope, if that's what happens, that the doctor will make a special appointment to follow up after the test, but I'm not holding my breath. Miriam has suggested that maybe her x-ray results are sufficient for a diagnosis already and that's why the office hasn't followed up yet, but I suspect that's wishful thinking.

---

She and I went out to a local winter festival here in Regina called Frost. There was a stand making maple syrup taffy: she wanted to share that with me since it was something she had on field trips growing up in Ontario and I'd never had it before. It was fun. It was tasty. But the experience was also sad. The limitations she has going to things like this just keep reminding me that things will quite possibly never be the same for her as they were before the progression of this illness, and by extension, very often will not be the same for me either. I miss just being able to do something as simple as go grocery shopping with her without worrying whether the activity will cause her pain for the rest of the day, or if she won't be able to stay with me in the store because of pain. We did go to CostCo together yesterday and it was a nice little trip. Some days and some activities are worse than others at different times and it's hard to know why.

The winter festival also had a few metal firepits going, burning wood and making a cheery warmth and glow. I caught the scent of woodsmoke once and felt a surge of fear and did my best to avoid them the rest of the time we were there. There's another way certain things may never be the same for me.

---

Despite the above few paragraphs, my mental health has been better of late. Regular attendance at the weekly online Still Coviding group I've been going to, regularly having a group of people who understand a big part of my situation in ways that most other people don't, has been a blessing.

I've been trying to connect with other folks in other ways, but without much success. I wrote someone who posted on the Reddit T4T community who is on the US west coast and described herself as a "Covid-conscious cutie looking for flirty friends." We exchanged a couple of messages, but I haven't heard back in a couple of days. She's a little over 10 years younger than me, so that may be an issue.

I posted on the Discord channel for the local trans support group. I said that it's been hard for me to attend the online meetings because health concerns for my partner mean I need to minimize Covid exposure, and it hurts to listen to people talking about all the things they're doing that I can't do. But, I said, being around just one or two people who are masking is an acceptable level of risk, and I would *love* to have a person or two to get together with and which anime once in a while. I got one message of sympathy and an offer to talk, but no interest in actually getting together.

I've looked at other posts on T4T lately, but haven't found anyone I felt like making contact with. It's funny; I am actively wishing for flirty/sexual connections with other people, and I'm a lot less demisexual than I once thought I was, but contacting people who seem to *just* be looking for people to sext with, or to get on video for sexytimes with, is not appealing. I need there to be *something, anything* beyond that. And the ages of most of the people posting there means my options are fairly limited. But I'm still looking.

---

My mental health has been good enough to get absorbed in a couple of hobbies. It's really good to break out of the vicious circle of mental health not being good enough to get absorbed in anything that's good for mental health. I got parts together to refurb the vacuum tube-based audio generator I bought from a Kijiji seller last year, but before they arrived in the mail, I got started on coding LED control algorithms. My friend Posi sent me hardware to do some of that after the fire happened, but I just hadn't been together enough to figure it out. We got on voice chat together and he walked me through setting up the software, soldering some wires to an Arduino and an LED strip, and basic use of existing libraries to make them light up.

Since then, I've spent a lot of hours writing code. I still have a lot to do and learn, but I did manage to finally get trans colors scrolling up and down on the front of the case the way I've imagined since putting this computer together more than a year ago, and it makes me happy. In general, my computer increasingly looks like unicorns and faeries are holding a rave in there and I am pleased. Here's a short video of one of the effects I have working:

https://www.youtube.com/shorts/fVvkrH4GTj8

---

CW: food/body/weight talk

I was managing my eating really well for quite some time, and am currently at my lowest weight since 2018 (which is still 40 pounds or so heavier than I would like) and I've been really happy about that. In the last week, though, I've had trouble again. I think it's possible that as this appointment for Miriam gets close, it's causing me a lot of stress, fear, anxiety, and anger at the medical system. It's so easy to use food to deal with those things.

---

Last but not least, I finally got that new piercing done that I've been planning to do with birthday/Chanukah money from Miriam's family back in November. I decided my mental health is finally good enough to take care of it, and I now have a helix done on my left ear. So many elf-girls in fantasy art have piercings in that area - probably a way for the artist to emphasize the exotic ear shape I suppose - and I want to have a pretty elf-girl piercing too. I'm also glad to have piercings connected to both my parents and Miriam's parents; that's really meaningful to me.
stormdog: a woman with light skin and long brown hair that cascades over one shoulder. On her other side, she is holding a large plush shark against herself. She has pink fingernails and pink cat eye glasses (Default)
I have such fear and anxiety about trying to join online communities that it's mostly kept me from trying my entire life. But I finally managed to not get past that fear, but at least sort of disassociate from it long enough to join a T4T Friends/dating Discord server. To get access to the rest of the channels, there's an introduction to fill out that includes age, and I would clearly be one of the oldest people there, if not the oldest. I'm scrolling past a few people in their 30s, but most people are between 18 and their early 20s. I feel like I'll either have no one interested in talking to me, or I'll just look like a creep. And this is exacerbating my fear that, by the time it's possible to significantly reduce Covid restrictions for in-person stuff, I'll be old enough that no one will be interested.

I'm not sure if I can manage to write an intro here.

ETA: I left the server. I could join again later if it seems like something I could do.
stormdog: a woman with light skin and long brown hair that cascades over one shoulder. On her other side, she is holding a large plush shark against herself. She has pink fingernails and pink cat eye glasses (Default)
In other news, yesterday I heated up the chicken sausages we'd bought in our last grocery collection yesterday for lunch for Miriam and I. As I took them out of the microwave, I smelled something that was really disturbing me. I actually can't remember after that whether I asked Miriam to come and smell them or get them out of the microwave, or what. But they were out of the microwave on the counter and I put mine in buns and put cheese and mustard on them and took a bite of one and I was scared and distressed and told Miriam that I could not eat them. I think it was then that I realized that they smelled like the condo after the fire.

Looking at the packaging, I realized they were made with smoked chicken, and I was smelling and tasting the smoke. In the past, I would have said that I didn't really know what a smoked taste was. I would eat smoked meat and question whether being smoked had any effect on my experience of eating them. I wasn't sure if my sense of taste was even good enough to notice any smoke flavor. Well, it is.

And that triggered my first crying panic attack about the condo in some time now. They're definitely getting further apart, so that's good.

I also tried to put the used king bed that I bought a few days ago together in the living room to take measurements yesterday and realized that I'm just not going to be able to do that in this space. I had a lot of fear and anxiety and shame that the bed would turn out not to fit a standard king mattress and slat base and it would become horribly complicated to make it work and we'd have wasted all our time and money on it and it would all be my fault.

So yesterday was already turning out to be difficult for me, even before the news about my grandmother.
stormdog: a woman with light skin and long brown hair that cascades over one shoulder. On her other side, she is holding a large plush shark against herself. She has pink fingernails and pink cat eye glasses (Default)
This Thursday, Miriam and I are meeting a contractor with the restoration company at our condo to "go over some things." "Due to the extent of the repairs," they say, "we will have lots of questions for you."

I imagine they'll have questions about materials or styles or something. We'll also ask them about replacing the bathtub with a walk-in shower, installing dishwasher connections that weren't there, and a couple other things.

But this will also be our first time inside the condo since it was a stinking, boarded-up shell full of the blackened remnants of most of our possessions, and we're not sure how we'll react. We both want to be able to live in it after it's restored, but we're worried there will be trauma-related fear and anxiety just being in the space. There's also fear and anxiety about how we're going to manage finding a place to live if the fear and anxiety of being there is enough that living there will retraumatize us, so that's a fun balance to strike.

If we want anything done that is different or an add-on from how it was, they'll probably need to get quotes. That will at least provide time for us to decide whether it makes sense, and we can afford, to have any upgrades done. If we're living there, certain things would be really nice. But if we're not living there, then certain things will make it easier to sell, too.

I'm still feeling a lot of guilt and shame about our unit being the cause of all the damage and disruption to our neighbors, and am scared about being around them. And that's without even wondering if any of them are going to be transphobes and whether I'll feel a need to hide that part of myself while we're there. And it seems to be a place where it's not unusual for people to be out on their patios in nice weather, so avoiding them on trips to the dumpster on the other side of the small complex, for instance, will be hard.

Yesterday, though, I was finally able to physically deliver our finished schedule of loss to the insurance adjuster, so the time frame on that is out of our hands for the moment. Now I just wait and see what's next, and how long it takes them to look through it and get back to us.
stormdog: a woman with light skin and long brown hair that cascades over one shoulder. On her other side, she is holding a large plush shark against herself. She has pink fingernails and pink cat eye glasses (Default)
I was thinking about having a defensive weapon like pepper spray in my purse for when I start going out dressed fem. It turns out that in Canada, carrying *anything* with the intent of using it as a weapon is basically illegal and subject to prosecution. It seems to come down to a judgment call sometimes about whether the powers that be believe you happened to be carrying something that you improvised as a weapon instead of intentionally carrying a thing because it could be used as an improvised weapon.

I have mixed feelings about this, but I certainly felt a lot safer in the Netherlands than I did in the US, and from what I can find, weapons laws in general in the Netherlands are similar to Canada (though firearm regulation is notably stricter in NL). It seems reasonable to be in favor of similar policies here.

Some elaboration:

https://en.wikibooks.org/wiki/Canadian_Criminal_Law/Weapons

https://www.torontodefencelawyers.com/crime-carry-pepper-spray-self-defence/
stormdog: (floyd)
I dreamed I was in a large crowd of people somewhere outside when we were all rounded up by authorities and made to get in line to talk to people at booths. My Dad was there, and though we tried to stay together, we got put in different parallel lines that moved at different speeds and I lost track of him.

When I got to one of the booths, they gave me a form to fill out. I knew something terrible was going to happen to people who got the form wrong. The oppressive government was looking for excuses to put people in jail or disappear them. But the form was in Dutch and I couldn't figure out what most of it meant.

I explained that I didn't speak very much Dutch. The woman staffing the booth was nice and tried to help me it, but one of the questions wanted all sorts of details about where and when I was born and how much I weighed and more, and I didn't know. My dad had finished and saw me, so he came to help. I was crying, and saying that in the US, we mostly just need to remember our social security number and that I didn't know the answers to these questions. The woman left to find a supervisor and I was sure that was a very bad thing. I cried harder.

I woke up. I'm still breathing a little raggedly.

I've been having issues with social anxiety lately that have been strong enough to manifest as agoraphobia. There are a bunch of garbage bags in the apartment that I keep meaning to take out, but I haven't. It's been hard to consciously put a finger on why, but in retrospect, at least some of it is fear. The idea of going outside causes low-level fear. I wonder if having been out on a walk yesterday brought some of it to the fore in my dreams.

Being in a country where I don't speak the dominant language is hard. I have a really hard time taking up metaphorical social space. Whenever I have a verbal interaction with someone, I feel like I'm a burden to them, and that I'm being disrespectful and self-centered by not knowing Dutch. It instills fear. Going out to a grocery store causes me fear because I know I'll have to interact with the cashier. Usually I can get by with a couple of phrases I know, but sometimes they say something I don't understand and I'm in the situation I'm so scared of.

I've been thinking more lately about how social anxiety has shaped my whole life as much as being faceblind. They are intertwined, but I've typically thought about it from a neurology perspective instead of a social perspective. A different point of view offers different conclusions. But more on that in another post.

Rationally I know that lots of people live in large Dutch cities for years without ever learning Dutch. Literally every person I have ever had to ask "Spreek je engels?" has, in fact, spoken English. But rationality does not help in this situation. I'm terrified at having to ask them to. I'm terrified of being a nuisance, or of being an exemplar of self-centered Americanism. I physically jump in fear at the sound of our door buzzer because it means I'll need to say something to the delivery person.

When I was planning my move here, I was very much excited at the thought of learning another language and experiencing a new place with new things to see and photograph. I'm not quite sure how I got from there to here, nor how to get from here to there.
stormdog: (floyd)
This past Wednesday, I told Dee that I really like them, I think they're a great person, I want to do more stuff together, but I don't want to have sex with them. It was really hard for me to do that and made me feel like a bad person. (This is not connected to my rational thoughts about the situation.) I still kind of feel like a bad person. We had a nice evening together regardless. We snuggled for a while and going to an art supply store.

In text yesterday, they asked whether this was for just right now, or for the foreseeable future. The short version of my answer (sent today because I couldn't figure out what to say before that) is that this is for the foreseeable future.

I don't know why I feel this way. I understand bits of it I guess, but not all of it together.

I talked with Danae about how I'm feeling in general. I'm so confused about where my head's at. I was so excited at first about having a play partner! I enjoyed sex with them. But then I didn't. I think part of it is me being bad at expressing what I want combined with us both being basically subs/bottoms. But there's more, and not all sex has to be about kink or power dynamics.

I know there's more because, right now, even the idea of of playing with other people, or being at play events, feels really scary. I'm on a Facebook list for a kinky social group that a friend (who I was sort-of-but-not-really dating [because, appropriately enough, I didn't know how to express what I wanted with] the summer before Syracuse) organizes. They are planning a play-party, and there is discussion happening about it.

It would be the first such event I've been to at a private home. People are talking about various toys they will be bringing. There will be needles, rope, floggers, a fuck-saw (penetrative toys mountable on a Sawzall) and maybe other stuff. I've wanted to feel welcome at an event like that for *so* long.

Instead, I feel scared. Really scared. Knot-in-my-chest, cold chills scared.

I think some of it is tied to my experience with Dee. But I don't know how. And some if it is a feeling that I wouldn't belong and be welcome, which I've felt before Dee when there was discussion about such get-togethers with this group. And there's more fear whose source I don't have a grip on. Thinking about being there makes me want to be safe at home with my safe partner and my safe kitty playing safe games. It makes me feel scared and vulnerable and endangered. (Yet not going makes me feel scared that I'll seem aloof or that I'm rejecting overtures of friendship and inclusion.)

I've been talking mostly about Dee with my therapist the last couple of visits. About how I don't want to have sex with them and how I don't understand that feeling and how terrifying it is to express that. Next week I'll go through this more general fear.

When I talked with them about not having done much explicit discussion with Dee about sex and kink before getting involved, they (my therapist) asked whether I'd read much about these issues. They noted that I'm fairly widely read and asked why I hadn't read poly-kink related things like The Ethical Slut or The Topping Book and The Bottoming Book. I didn't really know.

My ex had a copy of The Ethical Slut and wanted me to read it when we were transitioning out of monogamy. I started to, but the book, combined with the deeply uncomfortable situation I was in, was too much and I didn't read more than a few pages. Maybe that has something to do with it. Thinking of reading that book now feels threatening. Dangerous.

I think it would make sense to read the topping and bottoming books; it could help me learn how and when to express and negotiate sex and kink interests and activities. (I'm planning to order copies.) Right now, I get stuck. This is what happened with Dee, I think. At first, talking explicitly about sex seems presumptive. It would be rude to assume the other person is interested. And later it's somehow too late and doesn't feel natural. I'm looking for a perfect time and there isn't one. The therapist suggested this might be an issue and it made sense. "I'm looking for that intersection of curves on a graph," I laughed. "Let's see; the lines intersect right there; ok! Let's talk! That was easy."

Dee has suggested I get on Fetlife again. Someone that Danae and I met at LRA (and with whom we spent an hour or more talking about electronics work and restoring vintage vibrators) gave us their Fetlife name too. But being on that platform again is terrifying too. Years ago, someone sent me a message suggesting we get together. It was mildly suggestive at most, but it was terrifying and I left the platform because I just didn't now how to respond. Thinking of being there is still both scary and, because I don't seem to relate to people on social media the same way most other people do, frustrating.

I really want to be a part of this social world, but then...something happens. Maybe it's only appealing in theory. Maybe I just want to want these things. Or maybe I'm just so terrified by lack of structure and not knowing how to behave that it overwhelms any positive feelings.

I talked with my therapist about structure too. I'm terrified of a lack of known, understood structure to operate within. I'm terrified of trying to impose my own structure on others because I'm petrified at the thought of feeling that my needs are more important than (or maybe even as important as) those of other people.

Detail aside, sex feels scary right now in ways that it never has before. Now, not only does the thought of sex with Dee give me great anxiety, but even thoughts of sex with Danae are making me feel, if not exactly anxious, a bit nervously disinterested. In the past, even when I've had negative sexual experiences with others, I was still very interested in sex with my partner.

Now, instead, while characters in silly furry smut seem very appealing (for instance, a cute story on Literotica about a human military group working with lagomorophic aliens who relax through sex provided the basis for fun casual daydreaming), sex in real life, especially with people other than Danae, is scary.

I don't know why, and I don't like feeling this way. Through a lot of my 20s and 30s I felt like I was missing out on so very much, sexually, that I wanted in my life. I felt deep fear that maybe I missed my chance to do all these things that I wanted to do and people I knew were doing but circumstances kept me from. Do I now not want those things? Or am I just too scared about them to realize I want them? I've even flirted with the thought that I might not be interested in romantic or sexual relationships with other people. That maybe I'd be happy just being involved with Danae exclusively. I don't think that's true, but it feels safe.

Feelings of safety are very appealing right now. There isn't even really that much to be afraid of, but I feel afraid of things I can't even really identify.
stormdog: (floyd)
While walking around the park with shelter dogs and other volunteers a couple weeks ago, I had a couple of relatively lengthy conversations about my interest in urban space/place, what I'd intended to achieve by going for a master's degree, and about cities in general. It feels important to me, explaining how the 20th century Great Migration led to northern cities being notably more segregated than southern ones, the discriminatory real estate practices that caused that segregation, and how the move of industry to the sun belt made things even worse. A lot of folks don't realize that the northern US is more highly segregated than the South. I talked about my awareness of deeply unfair playing fields for people born in different places, and how I wanted to be involved with public policy that would address those issues.

More about trying to make a differnce in the world )

I've been talking to my therapist about the feelings of inadequacy or avoidance I have in situations like seminars in grad school, or even in conversations about complex topics with friends. I've had a deep belief, for all of my life I think, that whatever I have to contribute to a conversation, someone else around will know more about that thing than I do. Thus, I shouldn't bother trying to express my experiences or viewpoint.

When I was little, I never had any interest in being around people my own age. I had nothing in common with them, and what interactions I did have were negative. I felt superior to them I guess. I was always proud to be chosen to read something aloud in class because I was clearly the best reader there. I didn't understand why any of these words were difficult for the other kids who had to slowly sound them out. At recess, I ignored other kids and would sit with a notebook trying to figure out things like the speed of light in miles per hour, or the age in days of famous composers. It was at least partly performative, I think in retrospect. Showing that I wasn't like those other people. I was different. I was smart. Not that it wasn't something I enjoyed, too; creating these arithmetic problems for myself that resulted in strange trivia that I could tell people in conversation.

The conversations I did have were with my parents and their friends. I always fit in much better with my parents' friends and gaming partners than anybody my age. Those were some fairly intelligent people. F, who was a nuclear engineer. G, who possesses a vast array of information on, and analysis of, historical topics. He could probably be teaching at a university somewhere if he wanted to, except for his non-epileptic seizure disorder and other neurological problems. B, who had been a system administrator since long before there were organizations like CompTIA to certify one's ability to do so. Others too, some of whom I still see from time to time. They're wonderful people and I feel close to them. I've known them longer than anyone except my family.

As a kid though, there was no way I could know as much as them about almost anything. I internalized that fact pretty well, too. There's also a culture of one-upmanship in many geek circles I think, and these folks were not immune. I think I had a couple ways of coping with that. First, I would read obsessively about topics that were interesting to me so that I could have interesting things to say to people that they might not know. (That's a habit that has stuck with me, and once upon a time was one of the things that made me wonder if I was on the autism spectrum.) Second, I actively refrained from those interestingness contests because I knew that I would not win them. I was content to just offer the occasional observation and feel like I was part of things.

That's a mindset that I think has stayed with me all my life. Danae and I were at a board game meetup a few weeks ago where that kind of conversation happened (Danae referred to it being the portion of the evening where everybody tries to out-brilliant each other), and I removed myself to the sidelines and listened. That was partly because a lot of their talk was about hard science that I'm not very familiar with (that crowd leans much more physics than humanities), but it was also because there's a part of me that just feels like there's nothing for me to add. And that's a lot more negative an experience as an adult than it was as a child. I felt left out and alone, but not confident enough to say anything. It's the kind of experience that just makes me want to hide.

It's not that I think people should not be communicating in that way. It's a valid model of communication, and I think one that's both traditional and well-understood in that context. It's just also one that's very difficult for me personally because of my own...stuff.

And I felt that way at Syracuse a lot, too. Certainly nothing I have to say would be of much interest to the people I was in seminars with, my instincts told me. I think it was probably even more true there. I was in a humanities graduate seminar on a topic that the people I was with seemed much better read and more knowledgeable about. Before the urban social justice seminar one evening, I was asked what I thought about one of the books we'd just read. It was a relatively positive and hopeful one, and I really enjoyed reading it; I responded that it was my favorite of the ones we'd read so far. The querent's response felt almost scornful to me. Maybe that's me reading things in to the interaction, but in seminar they all dissected the book pretty thoroughly. Vivisected may be a better word: they sliced it up and held bits of it aloft to demonstrate how they failed to come together to form a viable organism. To be fair, that's how we treated all the books, as that is a main point of such a class. Getting at what works and what doesn't in the realm of theory we're exploring.

Regardless, seminars at Syracuse terrified me. I was terrified of going and exposing my ignorance and analytical shallowness to the world. I was terrified of not going, letting so many people down and squandering my opportunity for a fully funded grad degree. I made myself go. I made myself tear madly through the weekly tomes on justice theory and urban space. And in the end I got an A. The professor commented on my term paper that I was exploring interesting ideas and he hoped I'd continue. I still haven't shown that paper to anybody because I'm embarrassed. I somehow feel that I performed terribly. That my paper was rushed and incoherent. That I hadn't said enough in class, and that it was clear the other students were more knowledgeable, more analytical, just better. After the last session, the professor took people out for a meal at a nearby bar. I couldn't go; I was terrified of that, too. Everyone would know I didn't fit in with the group. I just went home.

I never managed to really make friends with the rest of my incoming class. They didn't invite me to things, and I didn't know how to invite them to do anything. A couple of the women talked about starting a group to work on our Spanish together, and I was excited by the idea. We got together once at the co-op that a couple of them live at and had an evening of Spanish conversation and it was great! But it didn't happen again. I wondered what happened. Did the idea fall by the wayside due to everyone's busy schedules? Did they decide they didn't want me to be a part of it? Was I somehow missing the conversations that people had about when it would happen again? Was there some sort of communication happening that everyone assumed I was part of and I didn't know how to be a part of it? Like, if I knew how to start and maintain friendships like most people then I'd just naturally be in the loop, and because I don't, I'm not? My thoughts were not very rational I suppose, and I was too busy hiding in my apartment and working to think about it too much.

The fears in the last paragraph are different in some ways, but the same in others. I fear not fitting in. I fear not being as smart. I fear being a nuisance. I fear being an imposition.

I didn't feel this way during the span after I split up with me ex and before I went back to undergrad and buried myself in school work. At least, I don't remember feeling that way. Maybe it was just far enough in the background that I don't remember it. The therapist asked me to think, this week, about what my life would be like if my inner joy and wonder shaped my life more than my inner fear. (We've had a couple conversations about personifying aspects of myself and talking to them individually. That's been thought-provoking and I'll write about it sooner or later.) Maybe my life would be more like that span, where I was enjoying conversations with strangers at conventions, and apparently being interesting and confidant enough for a certain person to invite me back to her room at Dellacon and then decide she wanted to stick around with me for six years and counting....

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stormdog: a woman with light skin and long brown hair that cascades over one shoulder. On her other side, she is holding a large plush shark against herself. She has pink fingernails and pink cat eye glasses (Default)
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